Inside Celine Dion’s Battle Against Stiff Person Syndrome: What She Said About Her Health Issues

In December 2022, Celine Dion revealed that after months of battling health issues, including muscle spasms and stiffness, he had been officially diagnosed Stiff person syndrome (SPS), a rare autoimmune disorder.

According to the Mayo ClinicStiff person syndrome is “a rare disorder of motor function characterized by involuntary rigidity of the axial muscles and superimposed painful muscle spasms, which are often induced by startles or emotional stimuli.”

Since her announcement, Dion has been open with her fans about how the condition has affected her life and career, and has been effusive in her gratitude for their support every step of the way.

She was forced to cancel their Courage world tourwhich restarted in 2022 after a hiatus due to COVID, but has made several public appearances in recent months, including one surprise moment on stage at the 2024 GRAMMYs and several trips to hockey games with your children.

Now, as he prepares to share even more about his recent struggles in a new documentary, I am: Celine Dion (releasing June 25 on Prime Video) ET takes a look at everything Dion has said so far about her battle with stiff-person syndrome and her hopes for her health and career in the future.

April 2022 – First signs

Dion first revealed that she was battling health issues in January 2022, when she was forced to cancel the remaining North American dates of his Courage World Tour due to a slow recovery from “severe and persistent muscle spasms.”

“I was really hoping to be okay to start now, but I guess I have to be more patient and follow the regimen my doctors prescribe,” she said at the time. “I can’t wait to get back on stage.”

However, its problems persisted and in April 2022, in a emotional message to fansannounced more cancellations and postponements.

The entertainer admitted that learning about her health “is going very slowly and it’s very frustrating for me. I’m receiving treatment from my doctors, taking medication, but I still have some spasms and it’s taking a lot longer.” recover from what I expected.”

December 2022 – Official announcement

On December 8, 2022, the singer was ready to share more about her current health issues. officially announcing his diagnosis.

“I’ve been dealing with health issues for a long time and it’s been very difficult for me to face these challenges and talk about everything I’ve been through,” she shared in an Instagram video. “I was recently diagnosed with a rare neurological disorder called stiff-person syndrome, which affects approximately one in a million people.”

“Although we are still learning about this rare condition, we now know that this is what has been causing all the spasms I have been having,” he explained. “Unfortunately, these spasms affect all aspects of my daily life, sometimes causing difficulties when I walk, and not allowing me to use my vocal cords to sing as I am used to.”

Dion cried when she announced the cancellation of the European tour dates and noted that she was doing everything in her power to be able to perform again.

“The only thing I know is singing. It’s what I’ve done my whole life and it’s what I like to do the most. I miss you so much. I miss seeing you all, being on stage, performing for you,” he said. continued. “I always give 100 percent when I do my shows, but my condition doesn’t allow me to give you that now. In order to communicate with you again, I have no choice but to focus on my health right now. And I hope to be on the path to health.” “Recovery. This is my focus and I am doing everything I can to recover.”

May 2023 – Total Cancellation

In May 2023, Dion had to admit to her fans that her health would prevent her from taking the stage for the foreseeable future, as announced the cancellation of the remaining 42 shows of his Courage World Tour.

“I’m very sorry to disappoint you all once again,” the singer said in a statement. “I’m working very hard to get my strength back, but touring can be very difficult even when you’re at 100 percent. It’s not fair to you to keep postponing shows, and although it breaks my heart, it’s best that I cancel everything now until really ready to get back on stage. I want everyone to know that I won’t give up… and I can’t wait to see you again.”

Celine Dion performs on her Courage World Tour in December 2019.Richard Lautens/Toronto Star via Getty Images

October 2023 – Hockey with the boys

Dion made it first public appearance in almost four years when he attended an NHL game between the Vegas Golden Knights and his hometown team, the Montreal Canadiens, on October 31, 2023.

Not only that, but the singer brought her three sons, René-Charles, 22, and twins Eddy and Nelson, 13, and they posed for a rare family photo while greeting Canadiens players and staff in the locker room after the game.

“My kids and I had a lot of fun visiting the Montreal Canadiens after their hockey game against the Vegas Golden Knights in Las Vegas on Monday night,” Dion captioned the post. “You played very well, what a game! Thanks for having us after the game, guys! It was memorable for all of us. Have a great season! – Celine xx…”

January 2024: Documenting your battle

In January 2024, Amazon MGM Studios announced that it had acquired worldwide rights to a feature-length documentary about Dion’s ongoing health battle, directed by Oscar-nominated filmmaker Irene Taylor.

According to the film’s official synopsis, I am: Celine Dion is “an intimate exploration that takes viewers on a journey into the past and present of the 55-year-old as She Reveals Her Battle With Stiff Person Syndrome (SPS) and everything he has done to continue performing for his beloved and loyal fans.”

From visiting her couture tour wardrobe and personal effects to spending time in the recording studio, the documentary captures the never-before-seen private life of a global megastar. “An emotional, energetic and poetic love letter to music, I am: Celine Dion “captures more than a year of footage as the legendary singer navigates her journey toward an open and authentic life in the midst of illness,” the description reads.

“These past few years have been very challenging for me, the journey from discovering my condition to learning to live with it and manage it, but not letting it define me,” Dion said in a doctor’s news release. “As the road to resuming my career as an artist continues, I have realized how much I have missed being able to see my fans. During this absence, I decided that I wanted to document this part of my life, to “try to raise awareness of this little-known condition, to help others who share this diagnosis.”

February 2024 – GRAMMY Gold

Dion made a triumphant return to the public eye, for the first time since November 2023, when she made a surprise appearance at the GRAMMY Awards 2024 to present the Album of the Year award, which went to Taylor Swift midnight. dion graced the stage with his eldest son René-Charles.

Dion received huge applause from the crowd and became emotional in response to the warm reception, saying, “Thank you all. I love you too. When I say I’m happy to be here, I mean it from my heart.”

And while the diva looked as stylish as ever on stage, she wowed fans around the world while backstage when the Queen of Pop shared his angelic voice during a song together with GRAMMY-nominated songwriter Sonyaé.

March 2024 – A promise to family and fans

On March 15, 2024, Dion celebrated International Stiff Person Syndrome Awareness Day with an inspiring Instagram post in which he promised to “one day return to the stage and live as normal a life as possible.”

“Trying to overcome this autoimmune disorder has been one of the most difficult experiences of my life,” she continued, “but I remain determined to one day return to the stage and live as normal a life as possible. I am deeply grateful. For the love and support from my children, my family, my team and all of you!”

Expressing her gratitude for the unwavering support she has received, Dion extended her encouragement to others fighting MSF around the world. “I want you to know that you can do it! We can do it!” she exclaimed, echoing a feeling of solidarity and strength.

April 2024 – Cover Girl

In April 2024, Dion was announced as the cover star of May 2024. Vogue Franceoffering a message of positivity in the midst of their current health battle.

“I feel honored to be able to do a photo shoot for Vogue France. “I’m so proud that, at 55, I’ve been asked to reveal my beauty,” Dion said in an Instagram caption of her stunning cover shoot. “But what is beauty?” Beauty is you, it is me, it is what is inside, it is our dreams, it is today. Today I am a woman who feels strong and positive about the future. One day at a time.”

In the interview, he talked about why he made the decision to document his recent struggles in the upcoming film.

“I wanted to do it as a documentary because it’s not a quick thing and there’s no quick fix for what I’ve been through,” Dion explained. “It’s not just about vocal exercise and Pilates. It’s physical and vocal rehabilitation, emotional and spiritual… the whole thing. And I want this story to be told in an elegant way. I respect my fans and myself enough to May they know the whole truth.”

May 2024 – I am: Celine Dion

the first trailer for I am: Celine Dion was released on May 23, 2024, and featured the singer’s tearful announcement, as well as behind-the-scenes moments like her return to the recording studio, a terrifying 9-1-1 call, and the painful decision to cancel her tour.

“It’s not hard to put on a show,” Dion says in the trailer, over footage of her taking medication and sitting in rehearsals. “It’s hard to cancel a show. I work hard every day, but I have to admit it’s been a struggle. I miss it a lot.”

“I just thought, if I could run or walk, if I could walk or crawl…” she continues through tears, but ends the clip on an ever-upbeat note: “I won’t stop.”

Celine Dion opens up about her battle with rigid person syndrome in new documentary ‘I Am: Celine Dion’.Amazon Prime Video

Before the documentary’s premiere, Dion will sit down with TodayHoda Kotb for an interview on June 11 at 10 pm PT/ET.

I am: Celine Dion debuts June 25 on Prime Video.


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